Archive for February 19th, 2004

Possible Dermagraphism site

Thursday, February 19th, 2004
UPDATE: January 3, 2007 I just wanted to take a moment and mention that while this project got put on hold due to other issues in life, it’s come back to the top of my list. I have bought the domain skinwriting.org and have decided to work out the way I want the site to be powered. If you would like to contribute in any way, please, please, let me know. And yes, I still suffer from it. I don’t think it ever truly goes away like they say.

I’ve always been one to talk about my dermagraphism because I’ve been dealing with it since 2000 and there just isn’t that much information out there on it. As a matter of fact, I haven’t gone searching recently but did today to see if any new information had come out and none has. There is still the exact same stuff that was out on the net four years ago! It’s sort of an information crisis. No one knows where to turn for information on how to handle it and what drugs might help. It’s the little details that are missing from the information that is available.

And there aren’t any personal sites really devoted to dermagraphism. I mean, my photos of it pop up like the 3rd entry on Google, which is just crazy. So, on Jason and Kaydee’s suggestion, I’m going to figure out hosting, buy the domain(s) and start putting up a community on the net for it. I’m going to share everything I shared in my email to Kaydee about it and add whatever else I can find. This also means that I’m going to be putting my research skills to the test and heading down to the BIG library downtown and do some heavy duty searching. I’m just tired of people not knowing anything about this skin issue. (more…)

First surgeries are scary stuff

Thursday, February 19th, 2004

I often joke that I’m the “nurse” for my family and friends because when someone gets sick or has a sick baby, they usually ask me what I suggest. Most of the time I have answers from my short experience as a mother. I should clarify that my experience is a bit different since my children were both preemies, but it is still fairly short in time. ;) Anyway, today I got an unknown boost from the hubby when we went to his doctor’s appt. We had to set up a surgery for him and weren’t even sure how serious it would be. Apperantly the recover is serious enough that they usually have a nurse come out to check the dressings. Jason told the doctor that we didn’t need the nurse because he knew I could handle it and take care of him. :D In the end, we did decide to have the nurse come out at least once just so that I make sure I’m doing the dressing properly, but it was a boost to know that he puts so much faith into me. (more…)